Mari's Moments

Avery's Bucket List: A little girl with a big message

On April 6, Avery Canahuati was diagnosed with Type 1 SMA, the most severe type of spinal muscular atrophy, an incurable, genetic disorder. Doctors gave her 18 months to live. So, her mom and dad created “Avery’s Bucket List” blog, a place where they could cherish the 5-month-old’s every moment.

The blog chronicled the Bellaire, Tex., family’s adventures and checked off the list as they went on. Soon, the inspirational blog went viral. Her

Avery’s Bucket List Facebook page

garnered 130,000 likes and her

Twitter account

was followed by nearly 8,600.

Sadly, Avery died Monday of pulmonary complications from the disease. In the final blog post, written by her father, Avery says:

"When I started writing my blog, I thought I’d only be speaking to my closest friends and family members.  Little did I know soooooooo many people would care about me and while I’m flattered to have so many people who love me, I hope they will also take time to love and care about all of my friends out there with SMA.”

Here are some items Avery was able to "scratch off my bucket list":

Wake up smiling

Successfully make it through my first surgery

Keep smiling even after surgery

Embarrass daddy by posting funny pictures of him online

Wake up without waking up mommy

Stand on a soap box...whatever that means

Bring complete strangers together in support of my cause

Further educate people about Spinal Muscular Atrophy

Stay up past midnight

Get over 100,000 page views in one day (04/18/12)

Be in the TV

Be in the Radio

Be in the Computer

Make friends from all over the world.

Wear a giant flower on my head

Wear pink & camouflage at the same time

Move my legs for mommy & daddy

Rock a bikini!

Take a big girl bath

Tasted solid foods

Getting grounded

Teach my daddy the definition of grounded

Get proposed to by a doctor (you see it your way, I’ll see it mine)

Find doctors who show emotion

Lick my first cake ball

My First Kiss - ahhhh Cooper my McDreamy

Meet someone else with SMA

Reach my 5-month birthday.

Wrap my arms around mommy & dance with her.

Blow bubbles with my mommy, daddy, and my aunties.

Go to my first baseball game

Throw out the first pitch at a baseball game

Throw a strike...whatever that means.

Have thousands of people cheer for me at once

Shake hands with super hot baseball players.

Take one last breath, then take one more before I go to live with my Uncle Bryant, Nana Carolyn, Papa George, and all my great Grandparents (Tommy, Laura, Jim, Walter, Julia, Joseph, and Audine).

Not let SMA take my smile away

Read Avery’s blog at