Three years ago my world was VERY different it is today. Today I picked my son up from his Valentine's Day party where he played with friends, shared cards and of course, ate way too much candy. Three years ago, not only did I have a small baby, but I had a baby who wasn't able to attend daycare. With his diagnosed pulmonary atresia, a congenital heart defect, getting sick from other kids was too hard on his heart. Now, the only thing that is really hard is to remember that this WAS our reality like millions of other kids who are born with CHDs.
I've been lucky to have the opportunity to chronicle Jackson's journey through this blog, newspapers and television -
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sharing info about CHDs. Now, even though his diagnosis doesn't affect us daily (thankfully), we feel that CHD awareness is more important than ever. We know we are very lucky because we learned about his CHD before he was born; for other kids, they aren't so lucky. However, if many kids had been screened before they went home, many children would have a better chance at a healthy life like Jackson.
For more information about legislation to make Pulse Oximetry mandatory for infants, please visit: http://www.bloganthropy.org/2011/02/support-coras-story-take-action-on-pulse-oximetry-advocacy/
Please join us this Valentine's by sharing your heart with our mended little hearts.