Share Your Heart With Congenital Heart Defect Awareness

Congenital Heart Defect Awareness, Feb. 7-14, 2012

02/10/2012 9:17 AM

02/10/2012 9:20 AM

Three years ago my world was VERY different it is today. Today I picked my son up from his Valentine's Day party where he played with friends, shared cards and of course, ate way too much candy. Three years ago, not only did I have a small baby, but I had a baby who wasn't able to attend daycare. With his diagnosed pulmonary atresia, a congenital heart defect, getting sick from other kids was too hard on his heart. Now, the only thing that is really hard is to remember that this WAS our reality like millions of other kids who are born with CHDs.


I've been lucky to have the opportunity to chronicle Jackson's journey through this blog, newspapers and television - http://www.myfoxdc.com/dpp/community/cmn/032210-Jackson-Reo-Has-Heart1269271231234 sharing info about CHDs. Now, even though his diagnosis doesn't affect us daily (thankfully), we feel that CHD awareness is more important than ever. We know we are very lucky because we learned about his CHD before he was born; for other kids, they aren't so lucky. However, if many kids had been screened before they went home, many children would have a better chance at a healthy life like Jackson.

For more information about legislation to make Pulse Oximetry mandatory for infants, please visit: http://www.bloganthropy.org/2011/02/support-coras-story-take-action-on-pulse-oximetry-advocacy/

Please join us this Valentine's by sharing your heart with our mended little hearts.

Join the Discussion

Fort Worth Star-Telegram is pleased to provide this opportunity to share information, experiences and observations about what's in the news. Some of the comments may be reprinted elsewhere on the site or in the newspaper. We encourage lively, open debate on the issues of the day, and ask that you refrain from profanity, hate speech, personal comments and remarks that are off point. Thank you for taking the time to offer your thoughts.

Commenting FAQ | Terms of Service