On April 6, Avery Canahuati was diagnosed with Type 1 SMA, the most severe type of spinal muscular atrophy, an incurable, genetic disorder. Doctors gave her 18 months to live. So, her mom and dad created “Avery’s Bucket List” blog, a place where they could cherish the 5-month-old’s every moment.
The blog chronicled the Bellaire, Tex., family’s adventures and checked off the list as they went on. Soon, the inspirational blog went viral. Her Avery’s Bucket List Facebook page garnered 130,000 likes and her Twitter account was followed by nearly 8,600.
Sadly, Avery died Monday of pulmonary complications from the disease. In the final blog post, written by her father, Avery says:
"When I started writing my blog, I thought I’d only be speaking to my closest friends and family members. Little did I know soooooooo many people would care about me and while I’m flattered to have so many people who love me, I hope they will also take time to love and care about all of my friends out there with SMA.”Here are some items Avery was able to "scratch off my bucket list":
Wake up smiling
Successfully make it through my first surgery
Keep smiling even after surgery
Embarrass daddy by posting funny pictures of him online
Wake up without waking up mommy
Stand on a soap box...whatever that means
Bring complete strangers together in support of my cause
Further educate people about Spinal Muscular Atrophy
Stay up past midnight
Get over 100,000 page views in one day (04/18/12)
Be in the TV
Be in the Radio
Be in the Computer
Make friends from all over the world.
Wear a giant flower on my head
Wear pink & camouflage at the same time
Move my legs for mommy & daddy
Rock a bikini!
Take a big girl bath
Tasted solid foods
Teach my daddy the definition of grounded
Get proposed to by a doctor (you see it your way, I’ll see it mine)
Find doctors who show emotion
Lick my first cake ball
My First Kiss - ahhhh Cooper my McDreamy
Meet someone else with SMA
Reach my 5-month birthday.
Wrap my arms around mommy & dance with her.
Blow bubbles with my mommy, daddy, and my aunties.
Go to my first baseball game
Throw out the first pitch at a baseball game
Throw a strike...whatever that means.
Have thousands of people cheer for me at once
Shake hands with super hot baseball players.
Take one last breath, then take one more before I go to live with my Uncle Bryant, Nana Carolyn, Papa George, and all my great Grandparents (Tommy, Laura, Jim, Walter, Julia, Joseph, and Audine).
Not let SMA take my smile away
Read Avery’s blog at averycan.blogspot.com